Endocrine Abstracts

AMEND provides information resources and support services to families with MEN syndromes, offering free membership, educational and peer support events, and a free Counselling Service provided by rare disease specialist psychotherapy organisation, Rareminds. Our 2021 Counselling Service feedback data (n=24) showed that the biggest issue by far for patients is dealing with their diagnosis (39% of respondents). Managing symptoms and treatment are also significant issues...

The German Network for Pituitary and Adrenal Disorders (Netzwerk Hypophysen- und Nebennierenerkrankungen e.V.) conducted a nationwide survey on unmet needs of patients with multiple endocrine neoplasia (MEN) in Germany. The study aimed to identify unmet needs in patient care and quality of life, as well as potential areas for improvement.Methods: The survey was based on a questionnaire developed by the European MEN Alliance (EMENA) and was distributed by...